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New book tells the story of family’s life with cystic fibrosis
Sixtyfive Roses: A Sister’s Memoir will help to raise funds for the Canadian Cystic Fibrosis Foundation
P.E.I. Lt.-Gov. Barbara Hagerman recently welcomed the opportunity to accept a copy of the recently published Sixtyfive Roses: A Sister’s Memoir.
The presentation was made at Government House by Luke Allen Affleck, a young Islander living with cystic fibrosis. Hagerman is the honorary patron of the P.E.I. chapter of the Canadian Cystic Fibrosis Foundation.
Each person showing support for cystic fibrosis research gives Luke, and many other Island families, great hope that a cure for this inherited disease will soon be found.
Canadian researchers identified the gene responsible for CF in 1989 and are continuing to be among the world leaders in research and treatment.
Heather Summerhayes Cariou’s book about her family’s experience with cystic fibrosis and the founding of the Canadian Cystic Fibrosis Foundation is available in bookstores now. A percentage of the proceeds from the book sales will be donated to the Canadian Cystic Fibrosis Foundation.
Summerhayes Cariou promised to die with her sister, Pam, who at the age of four was given only months to live when diagnosed with cystic fibrosis. At the heart of the book’s story is the relationship between these two sisters: Pam burdened with crippling terminal illness, and Heather with the anguish of survivor guilt.
Sixtyfive Roses is the way Pam pronounced the disease that altered the lives of her siblings and parents.
“Sixtyfive Roses: A Sister's Memoir is a story about fighting for your life and your dreams, in spite of obstacles. This incredible book will inspire you not to give up on life,” says a release announcing the publication of the book.
To learn more about this inherited disease or how you can support the fight for a cure for cystic fibrosis, check out www.ccff.ca or contact the local chapter president, Roberta Clark, 676-2055 (rdclark@edu.pe.ca).
Donations are always welcome. The Canadian Cystic Fibrosis Foundation’s Breath of Life plan allows people to offer monthly deductions from a bank account or credit card. CF can also be identified as your charity of choice on a provincial United Way pledge of support.
Luke is one of the many Islanders who will benefit from this kind of support.
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